National Committee on Vital and Health Statistics (NCVHS)

Tentative Agenda

Next Generation Vital Statistics: A Hearing on Current Status, Issues and Future Possibilities

Hubert H. Humphrey Building,
Room 705A,
Washington, DC

September 11-12, 2017

Printable Acrobat Agenda

Hearing Information Sheet

Hearing Background Information

Vision

A sustainable, secure and robust vital records infrastructure that meets the nation’s need for timely and accurate information

Guiding Question

How do we transform today’s vulnerable vital records data collection network into a network of state systems that produce accurate and timely information supporting a breadth of local, state and federal data needs?

Objective

Using a multi-stakeholder presentation and generative discussion approach, this hearing will:

  • Identify the essential elements of the vital statistics system – the components and as a whole,
  • Assess its current status and risks to its viability, and
  • Consider what actions are needed both to protect and improve the system.

Tentative Agenda

 

Monday, September 11, 2017

 

9:00 am

Welcome and introductions

Bruce Cohen, PhD  & Dave Ross, ScD
Hearing Co-Chairs

9:15 am

Overview – Importance and Need for Vital Records: Local, State, Federal, International 

Committee Q & A

Tara Das, PhD, MPH, MLIS: Texas Dept. of Health

Valérie Gaston: Statistics Canada, Health Statistics

10:15 am

Break

 

10:30 a

Panel 1. Current Status for Vital Records: State and Local Data Producers

FOCUS: Why do states collect vital records? How are they collected? How are they managed? How and why are they shared?

 
 

A) Introduction

 

 

 

B) Births

Shawna Webster, CAE: NAPHSIS

Rich McCoy: Vermont Dept. of Health and NAPHSIS

 

Wanda Ortiz-Medina: Providence Hospital

Susan Zannis: Southern NV Health District

 

15 minute break

 
 

C) Death

 

 

 

 

D) State/Jurisdictional Health Information Technology and Information Technology:

Robert C. Moore, IV, CFSP, CCO: Funeral director and NFDA

John Fudenberg, D-ABMDI: Clark Co. Office of the Coroner/Medical Examiner and IAC&ME

 

Kari Guida, MPH, MS: MN Dept. of Health

Linette Scott, MD, MPH: CA Dept. of Health Care Services 

 

Committee Q & A

Audience Input

 

12:00

Discussion and Public Comment

 

12:15

Lunch

 

1:15

Panel 2. Current Status of Vital Records: Federal Perspective FOCUS:

Why do federal agencies need vital records? How are they managed? How and why are they shared and used?

 
 

A) Federal Data Steward

 

 

 

B) Federal Health Users

Delton Atkinson, MPH: NCHS,CDC

Karen Matsuoka, PhD: CMCS, CMS

William Riley, PhD: OBSSR, NIH

 

Ursula Bauer, PhD: MPH,  NCCDPHP, CDC

Michael D. Kogan, PhD: MCHB, HRSA

  Committee Q & A  
   C)      Other Federal Users Stephen C. Goss, MS: Social Security Administration

Corryne Carter, MPA: Dept. of State

Carolyn Clancy, MD: Dept. of Veterans Affairs

Aaron Firoved, PhD: Dept. of Homeland Security

 

Committee Q & A

Audience Input

 

3:15

Break

 

3:30

Panel 3. Current Status for Vital Records: Other Users of Vital Statistics Data

FOCUS: Who are other users of vital statistics? What are these data needed for?

 
 

A) State users

 

 

 

 

B) Commercial users: financial institutions, life insurance

Rebecca Coyle, MSEd: AIRA

Michael Warren, MD, MPH: TN Dept. of Health and AMCHP

Janet Hamilton, MPH: FL Dept. of Health and CSTE

 

Susan McDonald, PBI Research

James DeAngelis, Verus Financial LLC

Dennis Becker, LexisNexis Risk Solutions

  Committee Q & A  
 

C) Researchers

Mohsen Naghavi, MD, PhD: Univ. of Washington

Rebecca Russell, MSPH: March of Dimes

 

Committee Q & A

Audience Input

 

5:15

Discussion and Public Comment

 

5:45

Adjourn

 

 

Tuesday, September 12, 2017

 
8:30 am Reconvene & Welcome Framing the Day:

  • Current challenges & barriers regarding the vital statistics system
  • Potential consequences if current challenges are not addressed
  • Opportunities available to leverage technology and new innovation to support the vital statistics system
Dave Ross, ScD and Bruce Cohen, PhD: Hearing Co-Chairs
8:45 am Panel 4. Challenges and Opportunities: Federal Level

FOCUS: What are the current challenges and issues for federal users, and how might they be addressed?

Committee Q & A

Audience Input

Delton Atkinson, MPH: NCHS, CDC

Eric Hughes, PhD: MITRE Corp. (under contract w/NCHS)

TBA, CMS

Ursula Bauer, PhD: NCCDPHP, CDC

Bill Riley, PhD: OBSSR, NIH

Stephen C. Goss, MS: SSA

Benjamin Bolender, PhD: Census Bureau, Dept. of Commerce

Corryne Carter, MPA: Bureau of Consular Affairs, Dept. of State

10:15

Break

 

10:30

Panel 5. Challenges and Opportunities: State and Local Levels

FOCUS: What are the current challenges and issues for State and local users, and how might they be addressed?

Committee Q & A

Audience Input

Lou Saadi: KS Dept. of Health & Environment and NAPHSIS

Terra J. Abrams, MBA, BPM: DC Dept. of Health

Mary Ann Sens, MD, PhD: Grand Forks County ND Coroner’s Office and NAME

Greg Davis, MD, MSPH: Jefferson County AL Medical Examiner’s Office

Amy Zimmerman, MPH: RI Exec. Office of Health & Human Services

Mary Beth Kurilo, MPH, MSW: ARIA

Michael Hogarth, MD, FACP, FACMI: UC San Diego Health

12:10

Discussion and Public Comment

 

12:30

Lunch

 

1:30

Panel 6. Future Directions

FOCUS:  In light of evolving technology and practice, what are the opportunities to reinforce and strengthen the national vital statistics system?

Committee Q & A

Audience Input

John Lumpkin, MD, MPH: RWJF

Kalvin Yu, MD: Southern CA Kaiser

Chesley Richards, MD, MPH, FACP: OPHSS, CDC

3:00

Discussion and Public Comment

 

3:25

Instructions for Audience Input and Break

 

3:45

Audience Input

 

4:00

Moving Forward: An Integrated Vision – Discussion

Focus: Identify key issues and key themes. Formulate framework to synthesize testimony.

R. Gibson Parrish, MD, Facilitator

4:45

Wrap-up

Dave Ross, ScD and Bruce Cohen, PhD

5:00

Adjourn

Dave Ross, ScD and Bruce Cohen, PhD

QUESTIONS FOR DAY 1, PANEL 1

  1. NAPHSIS and State Vital Health Registrar
  2. Explain where your role fits into the overall vital statistics system process. What is the workflow of that process at a high level?
  3. What are the legal underpinnings of the current system?
  4. How is the system financed? How does the financing approach impact your ability to participate in broader electronic data exchange?
  5. How are the data used and by whom?
  6. Births
  7. Explain where your role fits into the overall vital statistics system process. What is the workflow of that process at a high level?
  8. How does data sharing and transmission work?
  9. How are data protected?
  10. How are privacy and confidentiality issues addressed?
  11. How are the data used and by whom?
  12. Deaths
  13. Explain where your role fits into the overall vitals data process. What is the workflow of that process at a high level?
  14. How does data sharing and transmission work?
  15. How are data protected?
  16. How are privacy and confidentiality issues addressed?
  17. How are the data used and by whom?
  18. State/Jurisdictional IT Lead
  19. Explain where your role fits into the overall vitals data process. What is the workflow of that process?
  20. How does data sharing and transmission work?
  21. How are data protected?
  22. How are privacy and confidentiality issues addressed?

QUESTIONS FOR DAY 1, PANEL 2

  1. How are vital statistics used by your agency?
  2. How important of a role do they play?
  3. What are the quality concerns regarding the data?
  4. How are the data obtained/managed/shared/protected?

QUESTIONS FOR DAY 1, PANEL 3

  1. What do you use the data for? Why are they important?
  2. What is the current “experience” with vital records?
  3. How does data sharing, transmission and protection work?

QUESTIONS FOR DAY 2, PANEL 4 AND PANEL 5

  1. What are the current challenges and barriers regarding the current vital statistics system?
  2. What are potential solutions to these challenges and barriers?
  3. What needs to happen, e.g., resources, technical support, policy?
  4. What would be the possible consequences if current challenges are not addressed?

QUESTIONS FOR DAY 2, PANEL 6

  1. What opportunities are available to leverage technology/new innovation to support the vital statistics system?
  2. How would these opportunities improve the vital statistics system, e.g. data quality and timeliness?
  3. What issues and challenges need to be addressed? What are options for approaches?