Agenda of the April 30 – May 2, 2013 NCVHS Subcommittee on Population Health Subcommittee on Privacy, Confidentiality and Security Subcommittee on Standards Joint Roundtable on Health Data Needs for Community Driven Change

FINAL AGENDA

National Committee on Vital & Health Statistics

Subcommittee on Population Health
Subcommittee on Privacy, Confidentiality and Security
Subcommittee on Standards

Joint Roundtable on 
Health Data Needs for Community Driven Change

April 30 – May 2, 2013

National Center for Health Statistics
3311 Toledo Road
Hyattsville, MD 20782

Printable Agenda

Meeting Summary

Purpose of Hearing 

Building on previous work by the NCVHS concerning community uses of data to improve health, the NCVHS seeks to:

  1. advance its understanding of access to and use of data by communities to improve population health
  2. refine its Stewardship Framework for the Use of Community Health data to support the needs of various types of community initiatives
  3. better understand the role of government in providing data, tools, and resources to promote community driven change
  4. understand current state and possible gaps and variable standardization for community data collection and use.

DAY 1 – APRIL 30, 2013

Transcript

Time

Topic

Moderator

9:00 am – 9:15 am

Welcome and agenda reviewNote: 

Members of the Committee (only) will introduce themselves and state
whether they have any ethical conflicts

Linda Kloss, Co-Chair
Privacy, Confidentiality & Security
9:15 am – 9:35 am

The Community as a Learning Health System and 2013 Environmental Scan

  • High-level findings from the 2011 Report
    https://www.ncvhs.hhs.gov/111213chip.pdf
  • Insights from 2013 Environmental Scan
  • Input from Feedback Tool on data access and use, tools for working with data
Sallie Milam, Co-Chair
Population Health
9:35 am – 9:55 am

A Stewardship Framework for the Use of Community Health Data

Leslie Francis, Co-Chair
Privacy, Confidentiality & Security
9:55 am – 10:15 am Framing the major issues for this Roundtable

  • How do communities collect and compile data?
  • How do communities use data and incorporate them into priority setting and decision-making to create change?
  • How can stakeholders promote and support information-enabled community-driven change?
  • What standards exist for data collection, data content harmonization, data security, and data compilation and where are the gaps?
Bruce Cohen, Co-Chair
Population Health

Presentation

10:15 am – 10:30 am BREAK
10:30 am – 11:30 am PANEL 1: Collection and Compilation of Data

Paul Tang
Privacy, Confidentiality & Security
11:30 am – 11:45 am Review Logistics

  • Plans for breakouts
  • Assignment of groups (Blue, Yellow, Red)
  • Room numbers and locations
Debbie Jackson
Lead Staff, NCVHS
11:45 am – 12:45 pm LUNCH
12:45 pm – 2:00 pm Small Group Discussion #1:NOTE: At the beginning of the first Small Group Discussion, we will take 15 minutes or so for introductions and an overview of the group processHow do communities collect and compile data?

How do communities find and use data? Where are the gaps?

With the proliferation of data/data sources that already exist, how does a community know how to choose data? What are the methodologies for asset/resources assessment?

How best to promote openness, transparency, and choice when collecting data?

What analytic and technical support can local, state and federal governments provide?

How do communities partner with health care providers and academia?

How do communities deal with the lack of data content standards and variability across data sources? What can be done to address these challenges?

Blue Group
Yellow Group
Red Group
2:00 pm – 2:15 pm Break to reconvene
2:15 pm – 2:45 pm Report out from Small Group Discussion 1
2:45 pm – 3:45 pm PANEL 2 – Using Data for Decision Making

Jack Burke
Privacy, Confidentiality & Security and Population Health
3:45 pm – 3:55 pm Break – move to breakout rooms
3:55 pm – 4:55 pm Small Group Discussion # 2How do communities use data and incorporate them into priority setting and decision-making?

Is there a basic set of standard measures, variables that all communities should use?

What is the need for standardized approaches for generating qualitative information?

How to promote secure practices, data Integrity, creative use of de-identified data, and reduced risk of “enhanced” data sets when using data?

How are communities transforming data into policy actionable information and priorities?

How do communities choose among existng planning tools or decide to use own approach?

Blue Group
Yellow Group
Red Group
4:55 pm – 5:05 pm Break to reconvene
5:05 pm – 5:35 pm Report of Small Group Discussion 2Summary of insights from Day 1
Plan for Day 2
Llewellyn Cornelius
Population Health
5:35 pm Adjourn Day 1

DAY 2 – MAY 1, 2013

Transcript

Time

Topic

Moderator

9:00 am – 9:10 am Review work plan for Day 2 Bruce Cohen, Co-Chair
Population HealthLeslie Francis, Co-Chair
Privacy, Confidentiality & Security
9:10 am – 10:10 am PANEL 3: Using Data to Promote Community Driven Change Needs

Len Nichols
Population Health
10:10 am – 10:20 am Break – move to breakout rooms
10:20 am – 11:20 am Small Group Discussion 3How do we promote information-enabled community driven change?

How best to promote community engagement and participation?

What role does government have in promoting and supporting community change?

What specific analytic and technical resources can state and Federal governaments provide?

How can local health care organizations, academia, and other organizations partner to support community change?

Blue Group
Yellow Group
Red Group
11:20 am – 12:30 pm LUNCH
12:30 pm – 1:00 pm Report of Small Group Discussion 3 Vickie Mays
Population Health and
Privacy, Confidentiality & Security
1:00 pm – 2:00 pm PANEL 4 –Recommendations for Supporting Health Data Needs for Community Driven Change

Walter Suarez, Co-Chair
Standards
2:00 pm – 2:15 pm Break
2:15 pm – 3:15 pm Small Group Discussion 4What recommendations might NCVHS advance to support data-enabled community health?

Which priorities are most important?

What steps can the federal government take to advance community health?

What is the role of state government?

What can communities do?

Blue Group
Yellow Group
Red Group
3:15 pm – 3:30 pm Break to reconvene
3:30 pm – 4:45 pm
Report of Small Group Discussion 4
And general discussion of recommendations
Linda Kloss, Co-Chair
Privacy, Confidentiality & Security
4:45 pm – 5:00 pm Public Comments
(Provided in person or via WebEx Q & A during meeting)
Debbie Jackson
Lead Staff, NCVHS
5:00 pm – 5:15 pm Summary of insights from Day 2Plan for Day 3 Bruce Cohen, Co-Chair
Population Health
5:00 pm Adjourn Day 2

DAY 3 – MAY 2, 2013

Transcript

Time

Topic

Moderator

9:00 am – 11:45 am Review and refine options for potential Committee actionDraft a specific plan and timetable for carrying out the work Leslie Francis, Co-Chair
Privacy, Confidentiality & SecuritySallie Milam, Co-Chair
Population Health
11:45 am – 12:00 pm Public Comments (if necessary)
(Provided in person or via WebEx Q & A during meeting)
12:00 pm Adjourn Roundtable

Background materials

Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible.

Times, topics, and speakers are subject to change.  For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at https://www.ncvhs.hhs.gov

June 6, 2013