Final Agenda

NATIONAL COMMITTEE ON VITAL AND HEALTH STATISTICS

SUBCOMMITTEE ON PRIVACY, CONFIDENTIALITY, & SECURITY

Hearing on “Personal Health Records”

June 9, 2009

National Center for Health Statistics, Auditorium
3311 Toledo Road
Hyattsville, MD 20782
http://www.cdc.gov/nchs/about/hyatdir.htm

Printable Acrobat Agenda

Transcript

Tuesday, June 9, 2009

9:00 – 9:15 a.m. Introductions and Opening Remarks Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 – 10:45 a.m. Panel VIFederal Demonstration Projects Patrick Conway, M.D.
Office of the Assistant Secretary for Planning and Evaluation, HHS (for Medicare PHR Choice, pilot in Utah and Arizona)

Seth Edlavitch, M.P.H., M.H.A.
Program Manager & Project Director
My Personal Health Record, South Carolina
(MyPHRSC)

Chrislyn Gayhead, B.S.N, RN
Office of e-Health and Standards
Centers for Medicare and Medicaid Services, HHS
(for MYPHRSC)

Elizabeth S. Holland, M.P.A.
Office of e-Health, Standards and Services
Centers for Medicare and Medicaid Services, HHS
(for Medicare PHR Choice pilot in Utah and Arizona)

10:30 – 10:45 a.m. Break
10:45 – 12:30 p.m. Panel VIIConsumer Advocates and Attitudes Susannah Fox
Associate Director, Digital Strategy
Pew Research Center

Deborah C. Peel, M.D.
Patient Privacy Rights
Written Testimony

Dave deBronkart
(Blogger, “e-patient Dave”)
Co-Chair, Society for Participatory Medicine

Deven McGraw, J.D.
Director, Health Privacy Project
Center for Democracy and Technology

Robert Gellman, J.D.
Independent Privacy Consultant and
Author, “Personal Health Records: Why Many PHRs Threaten Privacy”
World Privacy Forum

12:30 – 1:30 p.m. Lunch
1:30 – 1:45 p.m. Statement from members of the public
1:45 – 3:00 p.m. Discussion
3:00 – 3:15 p.m. Break
3:15 – 4:45 p.m. Discussion
4:45 – 5:00 p.m. Plan next steps
5:00 p.m. Adjournment

Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible.

Times, topics, and speakers are subject to change.  For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at http://www.ncvhs.hhs.gov
All visitors at the Hubert H. Humphrey Building and the National Center for Health Statistics must be a citizen of the United States unless they have made prior advance arrangements to attend. Please bring valid photo identification.

June 16, 2009


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