Final Agenda


Subcommittee on Privacy, Confidentiality & Security

“Next Steps for Community Data Use”

Doubletree Hotel
8727 Colesville Road
Silver Spring, MD 20910

April 17 – 18, 2012

Printable Acrobat Agenda 

Meeting Synopsis

Day 1 – Tuesday April 17th


9:00-9:15am Introductions and Opening Remarks Leslie Francis, JD, PhD, Co-Chair
Linda L. Kloss, MA, RHIA, FAHIMA, Co-Chair
9:15-10:45am Panel I – Beyond Data Use Agreements: Governance Models Kelly Edwards, PhD
-University of WashingtonBradley Malin, PhD
-eMERGE Consortium, Vanderbilt University

Phillip Smith, MD, MPH
-Chair, National Institutional Review Board, Indian Health Service

10:45-11:00am Break
11:00-12:30pm Panel II – Protecting Small Groups Paul Spicer, PhD
-Professor of Anthropology, Center for Applied Social Research, University of OklahomaMalia Villegas, PhD
-National Congress of American Indians
12:30-1:30pm LUNCH
1:30-3:00pm Panel III – Consumer Attitudes About Community Health Initiatives Cyd T. Lacanienta, MSW
-Intergroup Services, Inc., BaltimoreJerusha Nelson Peterman, PhD
-Assistant Professor of Nutrition, School of Public Health & Health Sciences, University of Massachusetts, Amherst

Linda Silka, PhD, Director
-Margaret Chase Smtih Policy Center and Professor, School of Economics, University of Maine

3:00-3:15pm Break
3:15-4:45pm Panel IV – Using Results to Improve Community Health Dave Kaufman, PhD
-Director, Research and Statistics, Genetics & Public Policy Center, Johns Hopkins UniversityRyan Spellecy, PhD
-Associate Professor, Medical College of Wisconsin
4:45-5:00pm Statements from Members of the Public
5:00-5:1 pm Wrap up and set agenda for next day
5:15pm Adjourn first day

Day 2 – Wednesday April 18th


9:00-9:15 am Introductions and Opening Remarks Leslie Francis, JD, PhD, Co-Chair
Linda L. Kloss, MA, RHIA, FAHIMA, Co-Chair
9:15-11:00 am Subcommittee Discussion
11:00-11:15 am Break
11:15-12:30 pm Subcommittee Discussion
12:30-1:00 pm Wrap Up, Next Steps, etc.
1:00 pm Adjournment

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Times, topics, and speakers are subject to change.  For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at

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