DAY 1 - APRIL 30, 2013

Time

Topic

Moderator

Welcome and agenda review

Note: Members of the Committee (only) will introduce themselves and state
whether they have any ethical conflicts

The Community as a Learning Health System and 2013 Environmental Scan

• High-level findings from the 2011 Report
  http://www.ncvhs.hhs.gov/111213chip.pdf
• Insights from 2013 Environmental Scan
• Input from Feedback Tool on data access and use, tools for working with data

A Stewardship Framework for the Use of Community Health Data

• Issues explored at 2012 hearing
  http://www.ncvhs.hhs.gov/120417ag.htm
  
• Stewardship Framework Letter to Secretary Sebelius, December 2012
  http://www.ncvhs.hhs.gov/121205lt.pdf

Framing the major issues for this Roundtable

• How do communities collect and compile data?
• How do communities use data and incorporate them into priority setting and decision-making to create change?
• How can stakeholders promote and support information-enabled community-driven change?
• What standards exist for data collection, data content harmonization, data security, and data compilation and where are the gaps?

Presentation

BREAK

PANEL 1: Collection and Compilation of Data

• Andrew Bazemore, MD, MPH
  Director, Robert Graham Center for Policy Studies in Primary Care
  American Academy of Family Physicians
• Bridget Catlin, PhD, MHSA
  Senior Scientist & Program Director
  Mobilizing Action Toward Community Health (MATCH)
• Barbara Zappia, EdD, MPA
  Senior Program Officer
  Greater Rochester Health Foundation

Review Logistics

• Plans for breakouts
• Assignment of groups (Blue, Yellow, Red)
• Room numbers and locations

LUNCH

Small Group Discussion #1:

NOTE: At the beginning of the first Small Group Discussion, we will take 15 minutes or so for introductions and an overview of the group process

How do communities collect and compile data?

How do communities find and use data? Where are the gaps?

With the proliferation of data/data sources that already exist, how does a community know how to choose data? What are the methodologies for asset/resources assessment?

How best to promote openness, transparency, and choice when collecting data?

What analytic and technical support can local, state and federal governments provide?

How do communities partner with health care providers and academia?

How do communities deal with the lack of data content standards and variability across data sources? What can be done to address these challenges?

PANEL 2 - Using Data for Decision Making

• Lacey Hart, MBA
  Director, BSI PMO & Program/Project Manager
  Mayo Clinic, Rochester, MN
• Ninez Ponce, PhD (via teleconference)
  Associate Professor
  School of Public Health
  University of California - Los Angeles
• Eve Powell-Griner, PhD
  Confidentiality Officer
  National Center for Health Statistics, CDC
  [or Al Zarate, PhD
  Former Confidentiality Officer
  National Center for Health Statistics, CDC]
  
  

Small Group Discussion # 2

How do communities use data and incorporate them into priority setting and decision-making?

Is there a basic set of standard measures, variables that all communities should use?

What is the need for standardized approaches for generating qualitative information?

How to promote secure practices, data Integrity, creative use of de-identified data, and reduced risk of "enhanced" data sets when using data?

How are communities transforming data into policy actionable information and priorities?

How do communities choose among existng planning tools or decide to use own approach?

Break to reconvene

Report of Small Group Discussion 2

Summary of insights from Day 1
Plan for Day 2

Adjourn Day 1

DAY 2 - MAY 1, 2013

Time

Topic

Moderator

Review work plan for Day 2

Leslie Francis, Co-Chair
Privacy, Confidentiality & Security

PANEL 3: Using Data to Promote Community Driven Change Needs

• Carladenise Edwards, PhD
  Senior eHealth Advisor
  Zerodivide, Inc.
• Sharona Hoffman, JD
  Professor of Law and Bioethics
  Case Western Reserve University
• Donald Malec, PhD
  Mathematical Statistician
  National Center for Health Statistics, CDC

Small Group Discussion 3

How do we promote information-enabled community driven change?

How best to promote community engagement and participation?

What role does government have in promoting and supporting community change?

What specific analytic and technical resources can state and Federal governaments provide?

How can local health care organizations, academia, and other organizations partner to support community change?

LUNCH

Report of Small Group Discussion 3

PANEL 4 -Recommendations for Supporting Health Data Needs for Community Driven Change

• Denise Chrysler, JD
  Director, Mid-States Regional Center
  Network for Public Health Law
• Christopher Fulcher, PhD
  Co-Chair
  Center for Applied Research and Environmental Systems
  University of Missouri (Community Commons)
• Denise Love, BSN, MBA
  Executive Director
  National Association of Health Data Organizations

Break

Small Group Discussion 4

What recommendations might NCVHS advance to support data-enabled community health?

Which priorities are most important?

What steps can the federal government take to advance community health?

What is the role of state government?

What can communities do?

Break to reconvene

Report of Small Group Discussion 4

And general discussion of recommendations

Summary of insights from Day 2

Plan for Day 3

Adjourn Day 2

DAY 3 - MAY 2, 2013

Time

Topic

Moderator

Review and refine options for potential Committee action

Draft a specific plan and timetable for carrying out the work

Public Comments (if necessary)
(Provided in person or via WebEx Q & A during meeting)