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Final Agenda

NATIONAL COMMITTEE ON VITAL AND HEALTH STATISTICS

SUBCOMMITTEE ON PRIVACY, CONFIDENTIALITY, & SECURITY

Hearing on "Personal Health Records"

May 20 - 21, 2009
Hubert H. Humphrey Building, Room 800
200 Independence Ave, SW
Washington, D.C. 20201

June 9, 2009
National Center for Health Statistics, Auditorium
3311 Toledo Road
Hyattsville, MD 20782

Printable Acrobat Agenda Acrobat logo

 

Wednesday, May 20, 2009

Transcript

  
9:00 - 9:15 a.m.

Introductions and Opening Remarks

Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 - 10:45 a.m.

Panel I: What Will Consumer-Facing Health IT Look Like in 5 or 10 Years?

Robert L. Coffield, J.D. Acrobat Logo
Flaherty, Sensabaugh & Bonasso, PLLC

Jane Sarasohn-Kahn, M.A, M.H.S.A. Acrobat Logo
THINK-Health

Daniel J. Weitzner, J.D. Acrobat Logo
Policy Director, Technology and Society
World Wide Web Consortium
10:45 - 11:00 a.m. Break  
11:00 - 12:30 p.m.

Panel II: What Will Consumer-Facing Health IT Look Like in 5 or 10 Years? (Continued)

James Allen Heywood Acrobat Logo
Co-founder and Chairman
PatientsLikeME

Josh Lemieux Acrobat Logo
Director of Personal Health Technology
Connecting for Health, Markle Foundation

Don Mon, Ph.D. Acrobat Logo
Vice President of Practice Leadership
American Health Information Management Association
12:30 - 1:30 p.m. Lunch  
1:30 - 3:00 p.m. Panel III: PHRs Offered by Non-Provider/Plan Entities

Marc Donner, Ph.D. Acrobat Logo
Director of Engineering
Google Health

Colin Evans Acrobat Logo
Chief Executive Officer
Dossia

Philip Marshall, M.D., M.P.H. Acrobat Logo
Vice President, Product Strategy
WebMD Health

Michael Stokes, M.S. Acrobat Logo
Director of Policy and Compliance
Health Solutions Group
Microsoft Corporation
3:00 - 3:15 p.m. Break  
3:15 - 4:45 p.m. Statements from members of the public  
3:45 - 4:45 p.m. Discussion  
4:45 - 5:00 p.m. Administrative announcements and prepare for Day 2  
5:00 p.m. Recess until May 21  
 

Thursday, May 21, 2009

Transcript

  
9:00 - 9:15 a.m. Introductions and Opening Remarks Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 - 10:45 a.m. Panel IV: Plans and PHRs

Joy M. Grossman, Ph.D.
Senior Health Researcher
Center for Studying Health System Change
Testimony was based on an article that can be found at this address: http://www.hschange.org/CONTENT/1046/

Christopher Sullivan, Ph.D., Administrator Acrobat Logo
Office of Health Information Technology
Florida Agency for Health Care Administration (via phone)

Bruce H. Taffel, M.D. Acrobat Logo
Vice President, Chief Medical Officer
SharedHealth
10:45 - 11:00 a.m. Break  
11:00 - 12:30 p.m.

Panel V: Providers and PHRs

Gail Graham, Director of Health Data and Informatics Acrobat Logo
Veterans Health Administration
Department of Veterans Affairs

Anna-Lisa Silvestri, M.P.H. Acrobat Logo
Vice President, Online Services
Kaiser Permanente HealthConnect

James M. Walker, M.D. Acrobat Logo
Chief Health Information Officer
Geisinger Health System

Matthew Wynia, M.D., M.P.H. Acrobat Logo
Director of the Institute for Ethics
American Medical Association
12:30 - 12:50 p.m. Lunch Break  
12:50 - 2:00 p.m. Working Lunch/Discussion  
2:00 p.m. Recess until June 9, 2009  
 

Tuesday, June 9, 2009

Transcript

  
9:00 - 9:15 a.m. Introductions and Opening Remarks Leslie P. Francis, Ph.D., J.D., Co-Chair
John P. Houston, J.D., Co-Chair
9:15 - 10:45 a.m. Panel VI: Federal Demonstration Projects

Patrick Conway, M.D. Adobe Acrobat Logo
Office of the Assistant Secretary for Planning and Evaluation, HHS
(for Medicare PHR Choice, pilot in Utah and Arizona)

Seth Edlavitch, M.P.H., M.H.A. Adobe Acrobat Logo
Program Manager & Project Director
My Personal Health Record, South Carolina
(MyPHRSC)

Chrislyn Gayhead, B.S.N, RN Adobe Acrobat Logo
Office of e-Health and Standards
Centers for Medicare and Medicaid Services, HHS
(for MYPHRSC)
10:45 - 11:00 a.m. Break  
11:00 - 12:30 p.m. Panel VII: Consumer Advocates and Attitudes

Susannah Fox Adobe Acrobat Logo
Associate Director, Digital Strategy
Pew Research Center

Dave deBronkart Adobe Acrobat Logo
(Blogger, "e-patient Dave")
Co-Chair, Society for Participatory Medicine

Deven McGraw, J.D. Adobe Acrobat Logo
Director, Health Privacy Project
Center for Democracy and Technology

Robert Gellman, J.D. Adobe Acrobat Logo
Independent Privacy Consultant and
Author, "Personal Health Records: Why Many PHRs Threaten Privacy"
World Privacy Forum
12:30 - 1:30 p.m. Lunch  
1:30 - 3:00 p.m. Discussion  
3:00 - 3:15 p.m. Break  
3:15 - 3:45 p.m. Statements from members of the public  
3:45 - 4:45 p.m. Discussion  
4:45 - 5:00 p.m. Plan next steps  
5:00 p.m. Adjournment  

Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible.

Times, topics, and speakers are subject to change.  For final agenda, please call 301-458-4200 at NCHS or visit the NCVHS Home Page at http://www.ncvhs.hhs.gov
All visitors at the Hubert H. Humphrey Building and the National Center for Health Statistics must be a citizen of the United States unless they have made prior advance arrangements to attend. Please bring valid photo identification.

Oct. 16, 2009