soundPublic meetings of the NCVHS are broadcast live on the Internet.

National Committee on Vital and Health Statistics

Subcommittee on Privacy and Confidentiality

Tentative Agenda - Hearings on Privacy and Health Information Technology

February 23-24, 2005

Hubert H. Humphrey Building, Room 705-A
200 Independence Avenue, S.W.
Washington, D.C. 20201

Meeting Minutes


Day One – February 23, 2005


9:00 to 9:15 a.m. Introductions and Opening Remarks Mark Rothstein, J.D., Chairman
9:15 to 11:00 a.m. Panel 1 -  What is health privacy and why is it important?  
  • Background
Thomas Murray, PhD, The Hastings Center
  • Dimensions of health privacy
Anita Allen-Castellito, JD, PhD, University of Pennsylvania
  • Comparative notions of health privacy
Bartha Maria Knoppers, PhD, University of Montreal
11:00 to 11:15 a.m. Break  
11:15 to 12:15 p.m. How the Public Views Health Care, Privacy, and Information-Technology Applications Alan Westin, J.D., Columbia University Acrobat
12:15 to 1:20 p.m. Lunch  
1:20 to 3:00 p.m. Panel II -  Privacy in health care and in society  
  • Privacy and health care
Bernard Lo, M.D., University of California, San Francisco Acrobat
  • Patient interests
Joy Pritts, J.D, Health Policy Institute, Georgetown University
  • Privacy and substance abuse isssues
A. Thomas McLellan, Executive Director, Treatment Research Institute
3:00 to 3:15 p.m. Break  
3:15 to 3:45  p.m. Statements from the Public  
3:45 to 4:30 Subcommittee discussion  
4:45 p.m. Adjourn  


Day Two – February 24,  2005


9:00 to 9:15 a.m. Introductions and Opening Remarks Mark Rothstein, J.D., Chair
9:15 to 10:45 a.m. Panel III -  Disease and Health Advocacy Groups Len Lichtenfeld, M.D., F.A.C.P., Deputy Chief Medial Officer, American Cancer Society

PowerPoint Presentation Acrobat

Robert Levine, M.D., Chairman of Communications, Juvenile Diabetes Research Foundation
Article Acrobat

Linda Rosenberg, M.S.W., President and CEO, Nat'l Council for Community Behavioral Healthcare Acrobat
10:45 to 11:28 a.m. Break  
11:28 to 12:15 a.m. Subcommittee Discussion  
12:15 to 1:00 p.m. Lunch  
1:00 to 2:15 p.m. Panel IV -  Consumer Advocacy Groups Linda Golodner, President, National Consumers League

Joyce Dubow, Associate Director, AARP Public Policy Institute, AARP
2:15 to 2:30 p.m. Break  
2:30 to 3:45  p.m. Panel V – Privacy Concerns Related to Personal Health Records Janet Marino, M.D., Medical Informatics Consultant, MedicAlert Acrobat

Wendy Angst, M.H.A., General Manager, CapMed
3:45 p.m. Adjourn  

Should you require reasonable accommodation, please contact the CDC Office of Equal Employment Opportunity on (301) 458-4EEO (4336) as soon as possible. Times, topics, and speakers are subject to change. For final agenda, please call NCHS at 301-458-4200 or visit the NCVHS Home Page at